Kind and Gentle Soul


August 16th marks the one year anniversary of Jared’s death.  Kelli recently commented that it seems like yesterday… and yet at the same time seems a lifetime ago.  It is strange how time plays tricks like that.  Kelli describes Jared as intuitive.  As a old soul.  As a kind and gentle soul.

This song was written by a mold, chemical sensitivity, and debilitating EMF sensitivity survivor Sara Riley Mattson.  The song was written as a memorial to her friend’s mom when she passed.  It hauntingly speaks to the void left when a person leaves this earth.  Sara battled suicidal depression, chronic migraines and PTSD.  Jared would be so proud of Sara.  Sara shares “I had a happy ending.  The health I have now is more than I ever hoped for.”  She is Somebody!  The lyrics are poignant.  Please click Kind and Gentle Soul to listen to the song.

Long walks and long talks
Felt like I did the talking while you walked beside me
And if I’m strong, it’s because you always helped me carry on

And I’ve thought for some time
There’s no lovelier sight than when you’d smile
And the joy in your eyes
And your generous heart
So beautiful inside and out

A kind and gentle hearted soul
Is who we’ve all been so lucky to know
And I’m so glad I got to be your friend
But I can’t pretend I’m not going to miss you

I’ve been looking back at photographs
So much love in your eyes when you looked at dad
You’re singing and laughing
I can tell that you’re happy

And I’ve thought for some time
There’s no lovelier sight than when you’d smile
And the joy in your eyes
And your generous heart
So beautiful inside and out

A kind and gentle hearted soul
Is who we’ve all been so lucky to know
And I’m so glad I got to be your friend
But I can’t pretend I’m not going to miss you

Sara is a talented warrior, musician, and author.  She recently published a book about her experience with illness and recovery.   Please click Camp Like a Girl for the link to her book.  She also has a new book, Migraine, A Memoir of Healing, due out October 9th.

Camp Like a Girl

Karen, I AM Somebody


Art and photo credit by Karen (along with the video)

Karen is a mold warrior.  Exposure at work made her sick.  She felt like she was going to die.  Traditional doctors dismissed her illness as “stress”.  She used retirement funds to get help and saw a mold doctor.  She was diagnosed with CIRS (Chronic Inflammatory Response Syndrome) and MCS (Multiple Chemical Sensitivity).  She describes brain swelling and inflammation as “a very bad thing” when exposed to mold, gasoline, cigarette smoke, and perfume.  Her painting above is titled “Brain On Fire”.  Many environmentally poisoned individuals describe the brain inflammation in this way.

This video also paints the picture of the chaos, the fear, the panic and the solitude many mold sick people endure.  All in an effort to seek safe housing and safe air.  Many are alone and limited in their ability to participate in the things that used to bring them joy.  But, despite the struggle, or perhaps even because of the struggle, Karen is definitely somebody.

 

My Son Is Somebody


Art & photo by: m. sioux, mold survivor.

As parents of a “normal” child  who acutely became chronically ill, we searched high and low for answers.  We went to some of “the best” doctors.  Some of them didn’t even look at us but rather focused on their computer screen and filling in the boxes. Some of them chanted the ole “If you hear hoof prints look for horses not zebras”.  Guess what doctors… some of your patients are zebras.  And you are misdiagnosing them and improperly medicating them.  Do no harm, Doctor. Do no harm.

 

 

Introducing Dr. Rothman in Spring Lake NJ

Dr. Michael Rothman

Introducing Dr. Michael Rothman, MD, FACEP, certified in the Shoemaker Protocol

I had the pleasure of meeting Dr. Rothman this evening.  He is recently certified as a Shoemaker Protocol physician.  His office is located in Spring Lake, NJ.  He is a board certified internist and emergency room physician.  His website has detailed information about his practice and his protocol.  He is available to treat with phone consults after the first on site appointment.  He treats with a holistic approach and considers diet a key element of health.  He wrote a book called Edibolic Stress: How the Lies You Are Being Fed Are Making You Sick.  One review of the book said “If you or one of your loved ones has an inflammatory condition, dive in!”.

Edibolic Stress

Dr. Rothman initially studied physics and later moved towards medicine.  He explained he was a patient first.  He eventually decided to stop the prescribed medications and focus on diet and meditation.  He learned to heal himself and as a physician he embraces the opportunity to help heal others.

It was a pleasure to meet Dr. Rothman.  Take a look at his site and see if you think he might be a match for you.

 

Birthday Love

Jared BD

 

Today would have been Jared’s 18th birthday. He would be an adult now. No longer a child. He would be permitted to vote.

This website is approaching its one month “re”birthday. It is in its infancy. Birth is both painful and rewarding. At the end you have new responsibilities, some of which you need to learn as you go along. Same with this site. We are new to this. We are learning. We understand the awesome responsibility of trying to guide people though the mold maze.

In the US some practice the tradition of spanking the birthday person.  One spank for each year of birth.  This site and the Facebook groups polled, were “spanked” this week. Judgement was passed. Concerns were voiced. Prevalent opinions expressed as well as publishing those opinions were questioned. Upon birth, doctors used to spank babies to get them to breathe. That intervention is no longer practiced. Given time, support, nurturing… Babies usually breathe on their own, without being spanked. All mothers know this.

The polls of groups revealed support groups as primary importance which, ironically enough, were not really a “product” as the poll was asking. Air purifiers were the second most popular item polled as being helpful. This was the source of criticism and debate. It almost seemed as though individuals were trying to knock the breath out of our efforts. Well, feel free to pontificate, critique, and express concern. This website will grow and thrive and be a great source of comfort to many. It will breathe despite the air purifier debate and the spanking, not because of it.

Jared would be 18 today. He won’t be able vote. I wonder what his poll vote would have been. His mother Kelli is getting a lot of messages about him helping so many drawn to his story. She said “I know he made the difference he wanted to make. It’s not what I wanted, but I trust God with all my heart. Someday this is all going to make sense”.

Please join our efforts rather than distract us from our goals. Please weigh in, offer suggestions, reach out with a helping hand rather than attack. Let us be givers rather than takers. Help us wrap this site in a nice little package for Jared.

Happy Birthday Jared.  Here is a candle for your birthday.  A unity candle.