[vc_row][vc_column width=”1/1″][vc_column_text]When I was first diagnosed with a toxic mold illness, I was so incredibly relieved to have a name for what was wrong with me that I wanted to tell the world. I blogged about it, it went viral, and somehow in the midst of trying to get myself well I wound up feeling responsible to help the hundreds of people who contacted me also get well.
I expected it to be as simple as sharing my personal experience and telling people about Dr. Brewer’s published, peer-reviewed work. Surely intelligent, thinking people would be able to read his research for themselves, discuss it with their docs, and together make decisions about what to do next, I thought.
I had no idea what I was getting myself into.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_column_text]I was attacked by some women with Fibromyalgia who wanted me to know what a royal bitch I was for daring to suggest the syndrome could, in some cases, possibly be caused by something in the environment.
I was accused of being on the payroll of my doc (what an utterly dumbass claim, by the way), and of getting money from Real Time Lab for each patient I sent their way. For the record, my ONLY affiliation with RLT was that they were the lab that did my urine test and had been vetted by Dr. Brewer. I never received so much as a complimentary letter opener from them.
And, then there was the Shoemaker camp. Dr. Ritchie Shoemaker is a man who was (at one time) a doctor who rightly is credited for moving the cause of mold-related illness forward.
Numerous people say he’s helped them, and some credit him with saving their lives. I would never presume to discount any of their experiences.
Having said that, there is no published, peer-reviewed body of work to support any of his treatments. He’s been accused of the use of dangerous cholestyramine, offering online diagnostic tests, unnecessary testing, and the use of off label potentially toxic drugs.
Is he a quack? Or is he a genius? I don’t know. I just know there is too much controversy surrounding his methods and him as a person for me to feel good about sending hurting people to one of his colleagues.
[/vc_column_text][vc_column_text]On top of all the ugliness directed at me personally, there are scam artists who are absolutely polluting the Facebook group. They are slick, and detailed, and they are paid well to do what they do…
which is to create Facebook accounts that appear to be absolutely real, join Facebook groups like mine, ingratiate themselves into the group by having personal interactions with people that are deemed helpful, and all the while they are working for pharmaceutical companies, labs, remediation companies, lawyers, and more.
It’s insidious and there is no way to catch all of them. They spread lies, disinformation, and strife.
If you’re in a Facebook group that is health-related, you’ve encountered them although you likely never knew. You thought you were talking to a Mom in Miami, or a Grandma in New York, or maybe a super helpful Dad in Louisiana.[/vc_column_text][vc_column_text]So here I am in the midst of all of this, myself still healing and taking my treatments, spending time trying to deal with what’s happening in the Facebook group.
It’s just not something I can continue to do. That’s why I’m handing off the group to two ladies who are up for the job.[/vc_column_text][vc_column_text]
Meet Sandy Wolfe and Margaret Novins, the new administrators of the Facebook group Black Mold Symptoms.
I’m the mother of a teenage boy who suddenly became ill (bed bound) last year for 7 months. Mostly neuro symptoms. We went to 50 healthcare providers, 4 university hospitals. No answers. An ND suggested testing the house for mold. Positive. Did extensive remediation. Son improved. Returned to school. Relapsed. Found school to be toxic. Dropped out of school HS. Now participating in online college at age 16. Working part time. Learning to drive. Recovering. Briefly took oral antifungals. Currently practicing avoidance. No protocol.
I run Toxic Mold for Dummies and admin Got Mold and a couple of the kid’s mold boards. (Read more.)
I trust that these ladies care as much about “the cause” as do I, and that the health and wellness of group members matter as much to them as to me. You’ll be in good hands.
I’ll still write here from time to time and let you know of my progress and what I’m learning about this illness. You can sign up for the newsletter if you want to hear from me. Know that I’m thinking of all of you. YOU are so important to me.