Max Aminian, I AM Somebody

 

 

 

 

Please watch Max Aminian’s video. He reminds me so much of my son Jared. Jared would have graduated this year as well. Jared and I were also best friends, and mold took all of that away. The last 11 months of Jared’s life were sheer hell, and this reminds me of all of that. It reminds me to keep fighting and it reminds me that we need to stand up together and share our stories. I am so insanely proud of Max for being so open about his journey. His mother is amazing as well and her video we featured a few months back. Karen you raised an amazing young man and I am sorry for the years the two of you lost in mold. We can never get those years back. I only hope that our stories can somehow rewrite the wrongs of mold and help us change the future. I am determined to rise up again, nothing can stop me, and its people like Max that help me to do that! Thank you Max, wish you could have met Jared, you guys would have gotten along well…

Cathy Dubick, I AM Somebody

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(Cathy is on the right with the white dress)

Cathy is a very special friend of mine who lives in Florida. We became close in this mold battle. She lost a sister to ovarian cancer and so we have also connected through our loss and our faith. She is an amazing woman, who is both passionate and intelligent, and that is a powerful mix. Yet more importantly she has a heart of gold…

Cathy recently found out she has the dreaded mold gene, 7-3-53. It confirmed for her why she is sick. This has caused her to be determined to find her way out of mold no matter how hard that might be. She refuses to give up the fight, because she has hopes and dreams she can’t wait to pursue! I told her we were long lost sister’s cause we share a very rare blood type, and I truly mean it, she is family! She is my sister in mold and in Christ. I am blessed to know her and we are gonna to meet up in January and take on this cause in Florida!! I love her, and am praying she can get out of mold and get her life back cause we have work to do! You hear that sister, we have to work to do, so praying for God’s healing hand to be upon you, in Jesus’s name!! He is gonna do a mighty work in you!

Kind and Gentle Soul


August 16th marks the one year anniversary of Jared’s death.  Kelli recently commented that it seems like yesterday… and yet at the same time seems a lifetime ago.  It is strange how time plays tricks like that.  Kelli describes Jared as intuitive.  As a old soul.  As a kind and gentle soul.

This song was written by a mold, chemical sensitivity, and debilitating EMF sensitivity survivor Sara Riley Mattson.  The song was written as a memorial to her friend’s mom when she passed.  It hauntingly speaks to the void left when a person leaves this earth.  Sara battled suicidal depression, chronic migraines and PTSD.  Jared would be so proud of Sara.  Sara shares “I had a happy ending.  The health I have now is more than I ever hoped for.”  She is Somebody!  The lyrics are poignant.  Please click Kind and Gentle Soul to listen to the song.

Long walks and long talks
Felt like I did the talking while you walked beside me
And if I’m strong, it’s because you always helped me carry on

And I’ve thought for some time
There’s no lovelier sight than when you’d smile
And the joy in your eyes
And your generous heart
So beautiful inside and out

A kind and gentle hearted soul
Is who we’ve all been so lucky to know
And I’m so glad I got to be your friend
But I can’t pretend I’m not going to miss you

I’ve been looking back at photographs
So much love in your eyes when you looked at dad
You’re singing and laughing
I can tell that you’re happy

And I’ve thought for some time
There’s no lovelier sight than when you’d smile
And the joy in your eyes
And your generous heart
So beautiful inside and out

A kind and gentle hearted soul
Is who we’ve all been so lucky to know
And I’m so glad I got to be your friend
But I can’t pretend I’m not going to miss you

Sara is a talented warrior, musician, and author.  She recently published a book about her experience with illness and recovery.   Please click Camp Like a Girl for the link to her book.  She also has a new book, Migraine, A Memoir of Healing, due out October 9th.

Camp Like a Girl

Taylor Burnworth, I AM Somebody

In the words of Taylor….”Jared was a hero, and he deserves our attention.” Thank you Taylor, I know Jared knew you prior to his death, you were one of the moldies that he had come to know, and I will never forget the words when he saw your picture, he said, “good soul.” You have been a friend to me and many others in the mold community and you have always tried to lend a hand to those who are severely ill and in need of help. Jared was right you are a good soul and you are somebody…

Karen, I AM Somebody


Art and photo credit by Karen (along with the video)

Karen is a mold warrior.  Exposure at work made her sick.  She felt like she was going to die.  Traditional doctors dismissed her illness as “stress”.  She used retirement funds to get help and saw a mold doctor.  She was diagnosed with CIRS (Chronic Inflammatory Response Syndrome) and MCS (Multiple Chemical Sensitivity).  She describes brain swelling and inflammation as “a very bad thing” when exposed to mold, gasoline, cigarette smoke, and perfume.  Her painting above is titled “Brain On Fire”.  Many environmentally poisoned individuals describe the brain inflammation in this way.

This video also paints the picture of the chaos, the fear, the panic and the solitude many mold sick people endure.  All in an effort to seek safe housing and safe air.  Many are alone and limited in their ability to participate in the things that used to bring them joy.  But, despite the struggle, or perhaps even because of the struggle, Karen is definitely somebody.

 

Ian Grossman, I AM Somebody

Art & photo by: m. sioux, mold survivor.

Just before Mothers Day, Sarah Grossman’s 18-year-old son, Ian, had to be rushed by ambulance to the ER when he went into anaphylactic shock. He red-lined in the ER and, for a few terrifying moments, his family feared they were losing him. It was traumatizing to Ian, and terrifying to his family gathered around him. Toxic mold in a relative’s house where he is currently living provoked this emergency. Ian and his mom now have to live in a tent due to their illness. This is a powerful and heartbreaking testimony and sadly Ian is not alone, there are people all over the world experiencing the same effects from toxic mold. How many more lives need to be ruined? Toxic mold is a problem, but it is a very preventable problem. Ian is right, “this needs to stop.”

 

 

My Son Is Somebody


Art & photo by: m. sioux, mold survivor.

As parents of a “normal” child  who acutely became chronically ill, we searched high and low for answers.  We went to some of “the best” doctors.  Some of them didn’t even look at us but rather focused on their computer screen and filling in the boxes. Some of them chanted the ole “If you hear hoof prints look for horses not zebras”.  Guess what doctors… some of your patients are zebras.  And you are misdiagnosing them and improperly medicating them.  Do no harm, Doctor. Do no harm.