Online Poll: Top Supplements for Mold Illness

Closeup of Echinacea extract pills and fresh Echinacea flowers and leaves best suited for alternative medicine ads

Recently, we polled Facebook Mold Groups and asked them what supplements are helping them the most with their illness. There were many answers but these were by far the top supplements chosen.

Magnesium (47 Votes)
Probiotics (37)
Charcoal (32)
Epsom Salts (27)
Gluten Avoidance (24)
CSM (Cholestyramine) (21)
High Dose Vitamin D (17)
Zinc (13)
Fish Oil (11)
Liposomal Vitamin C and High Dose Vitamin C (tied) (10)
Essential Oils (9)
Glutathione, Turmeric, and Full Extract Cannabis Oil (tied) (8)

Honorable mentions go the following…
Intramax (6)
Mostly Raw Vegan Diet (6)
Meat Protein (6)
Green Juicing (6)
Silver (6)
Milk Thistle (6)
Vitamin E (6)
Curcumin (6)
Neti Pot (5)
Bentonite Clay (5)
Baking Soda (5)
Digestive Enzymes (5)
Garlic (5)
Gluten free, sugar, dairy, egg, and corn free diet (5)
Fasting (4)
Chlorella (4)
Apple Cider Vinegar (4)
L-Theanine (4)
Alpha Lipoic Acid (4)
BEG Spray (4)
Activated Folic Acid (4)
Ionic Foot Bath (4)
Molybdenum (4)
Coconut Oil (3)
Coffee Enema (3)
Zeolite (3)
Rosemary (3)
Selenium (3)
Boswellia (3)
Thieves Oil (3)
MCT Oil (3)
Saccharomyces Boulardii (3)
CoQ10 (2)
Bee Venom (2)
Welchol (2)
Drinking Olive Oil and Lemon (2)
Oxygen (2)
Flaxseed Oil (2)
B-12 (2)
Calm (2)
Asea (2)
Spices, Cinnamon, Cloves, (2)
Vasopressin (2)
Weed (2)
Parasite Cleanse (1)
Dhea-S (1)
Noni Juice (1)
Restore (1)
DMSA (1)
Univera Xtra (1)
Moringa (1)
Trans Factor (1)
Boron (1)
Niacin (1)
Iodine (1)
Chlorophyll (1)
Chloro Oxygen (1)

Passing the Torch

[vc_row][vc_column width=”1/1″][vc_column_text]When I was first diagnosed with a toxic mold illness, I was so incredibly relieved to have a name for what was wrong with me that I wanted to tell the world. I blogged about it, it went viral, and somehow in the midst of trying to get myself well I wound up feeling responsible to help the hundreds of people who contacted me also get well.

I expected it to be as simple as sharing my personal experience and telling people about Dr. Brewer’s published, peer-reviewed work. Surely intelligent, thinking people would be able to read his research for themselves, discuss it with their docs, and together make decisions about what to do next, I thought.

I had no idea what I was getting myself into.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_column_text]I was attacked by some women with Fibromyalgia who wanted me to know what a royal bitch I was for daring to suggest the syndrome could, in some cases, possibly be caused by something in the environment.

I was accused of being on the payroll of my doc (what an utterly dumbass claim, by the way), and of getting money from Real Time Lab for each patient I sent their way. For the record, my ONLY affiliation with RLT was that they were the lab that did my urine test and had been vetted by Dr. Brewer. I never received so much as a complimentary letter opener from them.

And, then there was the Shoemaker camp. Dr. Ritchie Shoemaker is a man who was (at one time) a doctor who rightly is credited for moving the cause of mold-related illness forward.

Numerous people say he’s helped them, and some credit him with saving their lives. I would never presume to discount any of their experiences.

Having said that, there is no published, peer-reviewed body of work to support any of his treatments. He’s been accused of the use of dangerous cholestyramine, offering online diagnostic tests, unnecessary testing, and the use of off label potentially toxic drugs.

Is he a quack? Or is he a genius? I don’t know. I just know there is too much controversy surrounding his methods and him as a person for me to feel good about sending hurting people to one of his colleagues.

[/vc_column_text][vc_column_text]On top of all the ugliness directed at me personally, there are scam artists who are absolutely polluting the Facebook group. They are slick, and detailed, and they are paid well to do what they do…

which is to create Facebook accounts that appear to be absolutely real, join Facebook groups like mine, ingratiate themselves into the group by having personal interactions with people that are deemed helpful, and all the while they are working for pharmaceutical companies, labs, remediation companies, lawyers, and more.

It’s insidious and there is no way to catch all of them. They spread lies, disinformation, and strife.

If you’re in a Facebook group that is health-related, you’ve encountered them although you likely never knew. You thought you were talking to a Mom in Miami, or a Grandma in New York, or maybe a super helpful Dad in Louisiana.[/vc_column_text][vc_column_text]So here I am in the midst of all of this, myself still healing and taking my treatments, spending time trying to deal with what’s happening in the Facebook group.

It’s just not something I can continue to do. That’s why I’m handing off the group to two ladies who are up for the job.[/vc_column_text][vc_column_text]

Meet Sandy Wolfe and Margaret Novins, the new administrators of the Facebook group Black Mold Symptoms.

Meet Margaret: 

I’m the mother of a teenage boy who suddenly became ill (bed bound) last year for 7 months. Mostly neuro symptoms. We went to 50 healthcare providers, 4 university hospitals. No answers. An ND suggested testing the house for mold. Positive. Did extensive remediation. Son improved. Returned to school. Relapsed. Found school to be toxic. Dropped out of school HS. Now participating in online college at age 16. Working part time. Learning to drive. Recovering. Briefly took oral antifungals. Currently practicing avoidance. No protocol.

Meet Sandy:

I run Toxic Mold for Dummies and admin Got Mold and a couple of the kid’s mold boards. (Read more.)

I trust that these ladies care as much about “the cause” as do I, and that the health and wellness of group members matter as much to them as to me. You’ll be in good hands.

I’ll still write here from time to time and let you know of my progress and what I’m learning about this illness. You can sign up for the newsletter if you want to hear from me. Know that I’m thinking of all of you. YOU are so important to me.

With love,

Sher

 

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The Brewer Protocol: My 3rd Month

[vc_row][vc_column width=”1/1″][vc_column_text]I’ve thought a lot about what I want to write today to each of you who are hurting, and tired, and sick, and scared. I want you to be encouraged to keep doing whatever is necessary to get yourself tested and get to a healthier place.

So, here it is…[/vc_column_text][vc_custom_heading text=”I ran!!!” font_container=”tag:h2|text_align:center” google_fonts=”font_family:Abril%20Fatface%3Aregular|font_style:400%20regular%3A400%3Anormal”][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_single_image image=”437″ alignment=”center” border_color=”grey” img_link_large=”” img_link_target=”_self” img_size=”full”][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_column_text]First I walked and then I ran. I would pick a spot in the distance, and tell myself I just had to make it that far. And, then I’d walk a bit, and then run again.

If you have read anything I’ve written about how incredibly ill I’ve been, then you have some idea what this meant to me.

I cried as I ran. I cried because it’s something I never imagined I’d be able to do.

And, I thought of you. Whoever, wherever you are, I thought of you. I thought I couldn’t wait to get home so I could share what was happening with my readers. I knew you’d feel this emotion almost as much as I do.

Yes, I’m very sore and super tired. Tomorrow I may not be able to bounce back. But, I ran.

Someday soon, you will run, too.

With love,

Sher[/vc_column_text][/vc_column][/vc_row]

Toxic Mold Diary: 2/16/15

[vc_row][vc_column width=”1/1″][vc_column_text]I’ve not been super bubbly the last few days, which is why I haven’t updated my diary here. I’m just in such a depression, which makes me angry, which makes me depressed.

It’s like Tilt-O-Whirl of crazy.

I’ve been taking my treatment like a good girl, however. The nausea seems to be pretty much under control and I’m not taking Zofran as much as I was.

The fatigue has been bad, but not as bad as it gets sometimes. It’s manageable. I’m having some difficulty walking and the stairs have been a challenge. I sort of find a spot and stay put for as long as I can.

But, I am FREEZING. So damn cold.. only in my lower extremities. Sometimes I think my feet are going to get so cold they’re going to crack and fall off. :-)[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_column_text]I’ve lost interest in so many things that I used to love. One of those is doodling. Normally, if you put a pen in my hands and give me something to draw on, I’m happy as a pig in mud.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_single_image image=”313″ border_color=”grey” img_link_large=”” img_link_target=”_self” img_size=”full”][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_column_text]I feel like I should pick up my pens again, but I just can’t seem to muster the “want to.” Does that happen to you?[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_single_image image=”314″ border_color=”grey” img_link_large=”” img_link_target=”_self” img_size=”full”][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_column_text]Those are some of the ones I finished several months ago. I have a bin full of the things. If aliens ever take over our planet, I’m hoping they think my doodles are money so I won’t have to live in a cage. 🙂

How are YOU today? What do you do when you’re down and can’t seem to pull yourself out of it?[/vc_column_text][/vc_column][/vc_row]

My Toxic Mold Diary: 2/12/15

I’ve not written in a few days because it’s been pretty rough. The other night I made it up about three stairs before I had to be helped the rest of the way up. Basically, my husband did the heavy lifting and I was in bed by around 7:45.

Yuck.

It was worth it, though. For two very important reasons…

pai

 

brady

I spent time with my sweet grandmonkeys, and even though it’s been rough since then, I loved every minute of it.

I’m a lucky MeeMaw.

These two kiddos are part of the reason I’ve got to get well as quickly as possible. I don’t want them to grow up hearing, “MeeMaw can’t do that right now,” or “MeeMaw is tired so she has to stop now.”

Tell me… who are the people in your life that you want to be well and healthy for? Who would be most excited if you were no longer suffering from a toxic mold illness?

xoxo,

Sher

TMI Diary 2/8/15

Today’s post is republished (in part) from one of my other blogs (sherbailey.com):

First of all, thank you to everyone who has been so sweet to me. You’ve shared your own stories of being sick, or of your child, Mother, brother, husband, and you’ve encouraged me to keep going even when I don’t want to. I love you. I’m blown away by your sweet spirits.

To those of you who’ve called me stupid, or liar, or dumbass, or ignorant, or a dumb f**k, I hear you, too. I’m not going to pretend it doesn’t hurt my feelings. It does. That’s what you were hoping for, right? You’re welcome.

The depression has been pretty out of control for me, and I’ll admit I feel like a complete nut case sometimes. You would think the diagnosis, after all these years and years of being sick, would make the depression go away or at least lessen. On the contrary. Since starting my treatments, I’ve really struggled with it. I’ve heard from some other toxic mold sufferers that it’s normal in the beginning, so I’m hoping that’s the case.

But…

there have been two really interesting days that have made me feel like I’m in some parallel universe, and it gives me such incredible hope.

A few days ago I felt so amazing that I actually RAN from the basement to the second floor, up the stairs and down the stairs, several times!

IMG_3314

If you knew me, you’d know what a miracle such a thing is for me. Usually I have to “plan” to go up or down stairs. I get to one level and I sit or lie down, panting and experiencing bone-deep fatigue. Not the other day.

I ran!

And, while I ran, I was laughing out loud like a little girl. I wasn’t tired. I didn’t hurt. I wasn’t panting.

I could hardly believe it.

Unfortunately, the next day I was right back to being “broken Sher” and oh my gosh, the depression was wicked then. I wasn’t one bit better.

Today I woke up early, bolted downstairs for coffee and Swedish pancakes, and I have been a dynamo of energy since. I went to Target and bought some of my favorite cleaning supplies (which for me is like buying a new purse because OCD), and I set out cleaning.

my favorite cleaning supplies

I’ve swept and mopped and vacuumed and I FEEL LIKE A ROCK GOD. 🙂 I love to clean. I love it so much. But, over the years I’ve had to have a housekeeper or my mister do the majority of it. Running the vacuum has even been way too much.

Not today! I DID IT!

I realize that given my experience so far, I may crash at any time. I may wake up tomorrow and not be able to feel my legs again, or be so tired that I can’t get off the sofa. I’ll deal with that then. But, this morning, I am so thrilled that I’ve been able to have this time in a body that wants to work with me rather than against me. I’m going to hold onto it as long as I possibly can.

In closing, I’m seeing many of you begin to register here on this site so that you can share your own stories. I’m so excited by that. THANK YOU! If you’re not yet registered, I invite you to do that. Just click here to register and introduce yourself. 

Wishing you health,

Sher