Erik Johnson, I AM Somebody

The Man, The Myth, The Legend

Erik Johnson, the very first mold warrior, has been seeking to educate researchers and the general public about the dangers of toxic mold since 1985. He has devoted his life to this cause, and I applaud him for his efforts and the groundwork he has laid for the mold community. He teaches mold avoidance and how to survive mold illness. Erik most often can be found climbing mountains, or teaching others how to climb the mountains in their lives. Listen to his story. He will be heard, he is Somebody.

Is Toxic Mold A Factor in Your ME/CFS?

CFS beach


Studies of ME/CFS 

  • 2013 study ME/CFS patients 93% of participants  (104 out of 112) had at least one mycotoxin in their urine. 
  •  2015 UK Study 1 in 50 16 year olds are affected with ME/CFS
  • Teens missed average of more than a half a day of school a week
  • Girls 2x more likely to be diagnosed with ME/CFS
  • Most often occurred in families experiencing adversity, (poor housing, financial, other stressors)
  • 94% of children with CFS/ME reported being disbelieved

Erik Johnson Was Right


Erik Johnson knew toxic mold was a significant factor in his illness. He found clusters of mystery malady in locations where toxic mold was lurking and told researchers to study the link between CFS and toxic mold way back in the 1980’s. Erik served as a prototype for the Holmes CFS definition, as he was one of the 160 who became ill in the Lake Tahoe incident. 

Erik walked out of the ampligen program, an experimental immune modulating drug treatment for CFS, to try mold avoidance instead, and within six months, climbed Mt. Whitney, the tallest mountain in the contiguous USA, to demonstrate his level of recovery. In the years since, has taken many people with CFS on a “CFS History Mold Tour” and showed them how to do the same.

Feedback from Mold Exposed

  • We polled 144 Facebook Toxic Mold Support Group Members
  • 91% of those polled believed that their exposure to toxic mold played a significant role in their development of ME/CFS.
  • 8% Percent was unsure if mold had played a significant role
  • 1% percent felt that mold was not a significant factor in their development of ME/CFS.

Of course this does not mean mold is ALWAYS a significant factor or the ONLY factor in ME/CFS. What it does tell us is that mold CAN be a cause and needs to be considered by those who have ME/CFS. Toxic mold can be hidden and despite what many think toxic mold can even be lurking in new homes, it can be behind walls, and it can be directly affecting your health. Have you tested your environment to see if it is causing your symptoms? It could be just that simple..


Top Symptoms of Mold Exposure, Its not Just in Your Head!


Memory Loss Research

A NY University delivered a low dose of toxic Stachybotrys into the noses of mice three times per week. After three weeks, the mice didn’t appear sick, However, they had difficulty remembering a fearful place and were more anxious than normal counterparts. (Science News, 2014)

In 2003 a study on molds and mycotoxins in building-related illnesses found that 70 percent of patients had physical signs and symptoms of neurological dysfunction (e.g., inability to stand on the toes or to walk a straight line with eyes closed, as well as short-term memory loss). (Environmental Health Center Dallas, 2003)

Depression Research

A groundbreaking Brown University study found a link between damp, moldy homes and depression. This came after a few UK studies discovered a link. (Brown University, 2007)

Face Book Groups Reveal Their Symptoms

Based on all of this it should be no surprise that the vast majority of you experienced Memory Loss just like the mice. What was  interesting about the poll results is that it is clear the brain is deeply impacted by toxic mold exposure. When the majority of you also experienced depression it only strengthens this conclusion. When number three and four are dizziness and headache again we are dealing with brain symptoms. Mold affects our cognition, and our our overall physical well being. This poll causes me to ask how many patients who are seeing Mental Health Doctor’s are not really suffering from mental illness, but rather from toxic mold or other toxic environmental exposure? The studies have been in for years, and now our poll is in. Real victims, telling a real story…. We are not crazy!!  It’s not just in our head. Mold profoundly impacts brain function, maybe more than we ever realized.

  1. Memory Loss
  2. Depression
  3. Dizziness
  4. Headache
  5. Joint Pain
  6. Heart Palpitations
  7. Insomnia
  8. Tiredness
  9. CFS, Back Pain, Hair Loss
  10. Ringing in the Ears
  11. Dark Circle Under Eyes & Puffy Eyes
  12. Blurry Vision
  13. Word Loss
  14. Dry Aging & Sagging Skin
  15. Rashes
  16. Acid Reflux
  17. Stomach Issues
  18. Weakness
  19. Brain Fog
  20. Twitching Eye Lids & Muscles
  21. Fibromyalgia
  22. Brain on Fire
  23. Shortness of Breath
  24. Rage
  25. Unexplained Bruising
  26. Horrible Negligent Doctor’s
  27. Chest Pain
  28. Flashes of Light in Field of Vision
  29. Candida
  30. Lowered Libido
  31. Dehydration
  32. Hypothyroid
  33. Red Spots
  34. Pins and Needles
  35. PTSD
  36. Intense Brain/Skull Pressure
  37. Recurring Sinus issues
  38. Temporary Anger Outbursts When Exposed
  39. Asthma Attacks
  40. Faintness
  41. Neuropathy/Nerve Pain
  42. Inability to Heal
  43. Waking up Gasping
  44. Other Immune Disorders
  45. Lumps under skin
  46. Black Spots in Eyes
  47. Burning Stomach
  48. Coughing
  49. Zapping Pains
  50. IBS
  51. Stiff Neck/Joints
  52. Nausea
  53. MCS
  54. Chronic Yeast Infections
  55. Frequent Urination
  56. Food intolerance and Increased Allergies
  57. POTS
  58. Slurring of Words
  59. Finger Nail Ridges
  60. Blood in Nasal Mucus
  61. Suicidal Thoughts
  62. Inability to Swallow
  63. Excema
  64. Temp Regulation Issues
  65. Bleeding Gums
  66. Night Sweats
  67. Sores or Boils
  68. Hives
  69. Blood in Stool
  70. Ataxia
  71. Electric Shocks
  72. Loss of bowel Control
  73. Impetigo
  74. Seizures
  75. ADHD
  76. Bloody Noses
  77. Coughing blood
  78. Sore Throat
  79. Burning Feet, eyes, mouth, throat
  80. Chronic Bacterial Infections (ear, eyes, throat, ect)
  81. Systemic Fungal Disease
  82. Kidney Infections
  83. Night Terrors
  84. Cancer
  85. Waking up due to inability to breath
  86. Body Odor
  87. Removal of Tonsils and Adenoids
  88. Incontinence
  89. Chronic Recurring Flu
  90. Fainting/Passing out
  91. Eyes Oozing
  92. Bleeding from Ears
  93. Recurring Ruptured Ovarian Cysts
  94. Excessive Menstrual Bleeding
  95. Chronic Fungal Infections, Multiple Sites
  96. Post Nasal Drip
  97. Swollen Kidneys
  98. Parasites
  99. Blacking out
  100. Ear and Sinus Surgeries

There are so many others to add. We will need to re-poll the groups with all these great answers. One that was on there and may have been forgotten by other groups was suicidal thoughts. I hear many talk about this, but sometimes when picking symptoms we forget.. (I mean we are moldies, check the number one symptom, if you have already forgotten what it is) 😉    I would like to re-poll in the future so that we are all picking from the same list and can get a more accurate count.