As parents of a “normal” child who acutely became chronically ill, we searched high and low for answers. We went to some of “the best” doctors. Some of them didn’t even look at us but rather focused on their computer screen and filling in the boxes. Some of them chanted the ole “If you hear hoof prints look for horses not zebras”. Guess what doctors… some of your patients are zebras. And you are misdiagnosing them and improperly medicating them. Do no harm, Doctor. Do no harm.
The Facebook Mold Community is launching a Documentary which will include stories from those within the community. This film is long overdue and it is time to hear from mold victims across the United States. Please comment here if you have a story you would like to tell, or know of one that needs to be covered. We have gathered many but we want to make sure everyone in the community is heard and given a chance to tell their story. We will need your support in the days ahead as we launch this campaign. Stand up with us and help mold victims everywhere reclaim their lives. This is about change, awareness, and most of all it is about hope!! May God bless this community….
Roughly 100 Facebook Toxic Mold Support Groups members were polled. What were you diagnosed/misdiagnosed with while living in a moldy environment? Poll Results revealed nearly all were diagnosed with Anxiety and Depression, and this was followed by allergies to foods and environment.
Dr Mary Ackerley found almost all individuals with depression or anxiety have some alteration in the function of their endocrine or immune system, and she found many of her psychiatric patientshad some degree of biotoxin illness.
“This Illness Is Not an Allergy.” Dr. Ritchie Shoemaker
“This illness is not an allergy. It is an inflammation within the body which is caused by an immune system that has gone haywire. The term “mold illness” is a subcategory of biotoxin illness called Chronic Inflammatory Response Syndrome (CIRS). The proper definition of CIRS is: An acute and chronic, systemic inflammatory response syndrome acquired following exposure to the interior environment of a water-damaged building.”
Erik Johnson knew toxic mold was a significant factor in his illness. He found clusters of mystery malady in locations where toxic mold was lurking and told researchers to study the link between CFS and toxic mold way back in the 1980’s. Erik served as a prototype for the Holmes CFS definition, as he was one of the 160 who became ill in the Lake Tahoe incident.
Erik walked out of the ampligen program, an experimental immune modulating drug treatment for CFS, to try mold avoidance instead, and within six months, climbed Mt. Whitney, the tallest mountain in the contiguous USA, to demonstrate his level of recovery. In the years since, has taken many people with CFS on a “CFS History Mold Tour” and showed them how to do the same.
We polled 144 Facebook Toxic Mold Support Group Members
91% of those polled believed that their exposure to toxic mold played a significant role in their development of ME/CFS.
8% Percent was unsure if mold had played a significant role
1% percent felt that mold was not a significant factor in their development of ME/CFS.
Of course this does not mean mold is ALWAYS a significant factor or the ONLY factor in ME/CFS. What it does tell us is that mold CAN be a cause and needs to be considered by those who have ME/CFS. Toxic mold can be hidden and despite what many think toxic mold can even be lurking in new homes, it can be behind walls, and it can be directly affecting your health. Have you tested your environment to see if it is causing your symptoms? It could be just that simple..
A NY University delivered a low dose of toxic Stachybotrys into the noses of mice three times per week. After three weeks, the mice didn’t appear sick, However, they had difficulty remembering a fearful place and were more anxious than normal counterparts. (Science News, 2014)
In 2003 a study on molds and mycotoxins in building-related illnesses found that 70 percent of patients had physical signs and symptoms of neurological dysfunction (e.g., inability to stand on the toes or to walk a straight line with eyes closed, as well as short-term memory loss). (Environmental Health Center Dallas, 2003)
A groundbreaking Brown University study found a link between damp, moldy homes and depression. This came after a few UK studies discovered a link. (Brown University, 2007)
Face Book Groups Reveal Their Symptoms
Based on all of this it should be no surprise that the vast majority of you experienced Memory Loss just like the mice. What was interesting about the poll results is that it is clear the brain is deeply impacted by toxic mold exposure. When the majority of you also experienced depression it only strengthens this conclusion. When number three and four are dizziness and headache again we are dealing with brain symptoms. Mold affects our cognition, and our our overall physical well being. This poll causes me to ask how many patients who are seeing Mental Health Doctor’s are not really suffering from mental illness, but rather from toxic mold or other toxic environmental exposure? The studies have been in for years, and now our poll is in. Real victims, telling a real story…. We are not crazy!! It’s not just in our head. Mold profoundly impacts brain function, maybe more than we ever realized.
There are so many others to add. We will need to re-poll the groups with all these great answers. One that was on there and may have been forgotten by other groups was suicidal thoughts. I hear many talk about this, but sometimes when picking symptoms we forget.. (I mean we are moldies, check the number one symptom, if you have already forgotten what it is) 😉 I would like to re-poll in the future so that we are all picking from the same list and can get a more accurate count.