Toxic Mold Illness: FAQs

Frequently asked questions about toxic mold.

[vc_row][vc_column width=”1/1″][vc_column_text]I’m routinely asked the same few questions by hundreds of different people, so I decided to answer them all here.

First of all, here is a short explanation of Dr. Joseph Brewer’s research. Dr. Brewer is an infectious disease specialist in Missouri. (** Dr. Brewer is not accepting new patients.)[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_message message_box_style=”3d” style=”rounded” message_box_color=”turquoise” icon_type=”fontawesome” icon_fontawesome=”fa fa-info-circle” icon_openiconic=”vc-oi vc-oi-dial” icon_typicons=”typcn typcn-adjust-brightness” icon_entypo=”entypo-icon entypo-icon-note” icon_linecons=”vc_li vc_li-heart” icon_pixelicons=”vc_pixel_icon vc_pixel_icon-info”]Dr. Brewer’s peer-reviewed, published research has concluded that the most likely reservoir for the colonization of mycotoxins is the sinus area. Once colonized mycotoxins are protected by a biofilm coating, preventing elimination from the body. Dr. Brewer reports that these mycotoxins impair mitochondrial function creating oxidative stress.

His research has shown that many (if not most) of the symptoms from which people with Fibromyalgia and Chronic Fatigue Syndrome suffer, can be attributed to these mycotoxins.

Dr. Brewer’s Research:

Chronic Illness Associated with Mold and Mycotoxins: Is Naso-Sinus Fungal Biofilm the Culprit? 

Detection of Mycotoxins in Patients with Chronic Fatigue Syndrome [/vc_message][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_toggle title=”What are the symptoms of a toxic mold illness?” open=”false” style=”default” color=”Default” size=”md”]Please note that you do not have to have every single symptom to have a mold related illness.

  • Abdominal pain
  • Aches and pains
  • Aggression and other personality changes
  • Anxiety
  • Bleeding gums
  • Bleeding in the brain
  • Bleeding tendency
  • Blood not clotting properly
  • Blurry vision and vision worsening
  • Bone marrow disruption
  • Brain fog
  • Burning sensation in the mouth
  • Chest pain
  • Chronic fatigue
  • Cold or flu type symptoms or recurring colds
  • Coma
  • Confusion
  • Coughing
  • Crawling skin
  • Damage to heart
  • Death
  • Depression
  • Dermatitis
  • Diarrhea
  • Difficulty breathing
  • Difficulty concentrating and paying attention
  • Disorientation
  • Dizziness
  • Drowsiness
  • Eye damage
  • Eye inflammation and soreness
  • Fever
  • Hair loss
  • Hallucinations
  • Headaches
  • Hearing loss
  • Heart inflammation
  • Hemorrhage – internal bleeding
  • Immunosuppression
  • Impaired learning ability
  • Infections reoccurring
  • Irregular heartbeat
  • Itchy nose
  • Jaundice (yellowing of the eyes & skin)
  • Joint pain
  • Joint stiffness
  • Liver disease
  • Low blood pressure
  • Malaise
  • Memory loss and memory problems
  • Muscle pain
  • Nausea
  • Nose bleeds
  • Numbness
  • Pulmonary edema
  • Pulmonary hemorrhage
  • Red or bloodshot eyes
  • Runny nose
  • Seizure
  • Sexual dysfunction
  • Shaking
  • Shock
  • Shortened attention span
  • Slowed reflexes
  • Sore throat
  • Stuffy, blocked nose
  • Tingling
  • Trembling
  • Vomiting
  • Vomiting up blood
  • Weakness
  • Weight loss, anorexia
  • Wheezing

[/vc_toggle][vc_toggle title=”What test do I need?” open=”false” style=”default” color=”Default” size=”md”]I did a urine test. It was simple and easy, but it wasn’t cheap. (Around $700) I used a lab called RealTime Lab located in Texas, and simply mailed my sample in a kit my doctor gave me.

The test is called a Mycotoxin panel, and it’s my understanding that RealTime Lab has a patent pending, so it’s not a test your local doctor’s lab can do.

It tests for:

  • Ochratoxin A
  • Aflatoxin Group
  • Trichothecene Group

I’ve heard of other tests, but I have no personal experience about those. You are invited to join the Facebook group “Black Mold Symptoms” and ask the thousands of people there what test they took.[/vc_toggle][vc_toggle title=”Can any doctor test for the black mold or do you have to see a specialist?” open=”false” style=”default” color=”Default” size=”md”]Any doctor or nurse practitioner can both test and treat toxic mold illness. You do not need to see a specialist.

That said, you should expect some from a medical professional who has not yet heard of this illness. If you do your homework prior to speaking to your doc, things should go much smoother.

First of all, you should let your doctor know that this is not something silly you read on the internet. Explain that their is published, peer-reviewed research that he or she should read. To help you with that, click here for a free printable I created that you can take with you to your appointment.

Second, explain that this is not the same as a mold allergy. Seeing an allergist isn’t the answer.

And, finally, be positive. If your doctor refuses to order the test, that’s okay. No matter where you live, I would hazard there is most probably more than one doctor. Don’t give up until you find a medical provider who wants to be on your healthcare team.

[/vc_toggle][vc_toggle title=”What is the treatment?” open=”false” style=”default” color=”Default” size=”md”]I can only speak to the treatment I am on, which is the Brewer Protocol. (Named after Dr. Joseph Brewer, an infectious disease specialist.) It costs me roughly $90 a month. Some insurance will cover it. Mine does not.

There are three nasal sprays in this protocol, but two of them vary from patient to patient.

Chelating PX Nasal Spray

Aerosolized intranasal EDTA/Polysorbate 80 is used to destroy biofilm which are harboring the mycotoxins. (I inhale one vial of this, once a day.)

Amphotericin-B 0.25% Nasal Spray

Once the biofilm is destroyed, aerosolized intranasal Amphotericin-B is used to eliminate nasal colonized mycotoxins. (I do not take this one.)

Nystatin

This is what I have been prescribed. I take one capsule, dissolve it in a small amount of saline and inhale it.

It’s a one-two punch.

Chelating PX dissolves the biofilm coating, clearing the way for a direct attack and elimination of the mycotoxins by the topical Amphotericin-B or Nystatin. The Chelating PX is in the morning and Amphotericin-B in the evening.[/vc_toggle][vc_toggle title=”How can I find a doctor who has experience with this?” open=”false” style=”default” color=”Default” size=”md”]I’ve created a map that lists doctors who I’ve been told understand and treat toxic mold illness. I can’t say whether they are reputable, nor can I say for sure that they do indeed treat this illness. Each one is listed because someone has told me about them.

The list can be found by clicking here. Please do your own due diligence and ask good questions before settling on any new doc.[/vc_toggle][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_column_text]If this is your first time here, please visit this page for more help. I’ve tried to lay out everything you may need there, as I am (sadly) just not able to keep up with all the comments, emails, Facebook requests, etc.[/vc_column_text][/vc_column][/vc_row][vc_row][vc_column width=”1/1″][vc_wp_posts show_date=”” title=”My most recent posts:”][/vc_column][/vc_row]

9 thoughts on “Toxic Mold Illness: FAQs”

  1. Hi Sher, I’m hoping you can help me. I live in Colorado, south of Denver, and need to find a doctor who treats Biotoxin illness… I have an ENT, but need more help getting better.. I was diagnosed in 1997 with fibromyalgia. There’s so much more going on … I’ve been sick too long, I’ve missed out on raising my only child,… She’s 13 now and I’ve never been able to be there for her like a normal mom… and my heart is broken, from the pain I’ve caused her as well as my own.., I’m praying you know of a doctor who could help me, I’m so sick of being sick.. I lost my life.. Thank you for any help.

    1. Dr. Elder in Parker is great. I don’t know if he has experience with this, but he is a smart, caring Dr. Rare.

    2. Aspen Creek Family Medicine 303 840 3800
      I lived in CO and we just moved to Scottsdale.
      I miss Dr. Elder!

  2. from the website at RealTime Labs
    ALL NEW! RealTime Laboratories is pleased to announce our Patient Navigator Program. We can help find a doctor in your area, explain our testing process to your healthcare practitioner, provide information to help get your test preauthorized by insurance, order a test kit, and more.
    855 692 6767

  3. Hi, I’ve been diagnosed with Fibryo for 3 years now and my son too. I now have Bastrupps disease as well as SIBO. Ism suffering from Chronic sinus infections as well as severe dry eyes nose and mouth with Thrush. I have a roumatologist. Should I ask her to test me or is she going to look at me like I’m an idiot.

  4. Did you ever have any type of sinus surgeries? Just curious as to if this is something they could have began from a sinus surgery. My mom has had 2-3 sinus surgeries, which after it is all said and done did nothing. All of her (fibro) symptoms and other health problems began at once with no warning and they all seem to just keep piling up. So I was wondering in all the people you have spoken with, have you found any correlations to Mycotoxins and sinus surgeries. Thanks for your time and consideration.

  5. Melissa, I live in Thornton and was also looking for a mold-savvy doc. Real Time Labs sent me a list of the Drs in CO who
    use their testing. I called almost all of them and could only get an appt with a Naturopath group in Boulder. I’m set to see
    her Monday as I tested positive for Trichothecenes. If you want to message me on the Facebook group, we can talk more
    about CO options, etc.

    Linda Howard Haney

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